• cdf12345@lemm.ee
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    11 months ago

    I hate BS like this. And yes I’m biased because I got a double lung transplant. There are so many myths about organ donation. You basically have to have no brain activity and be stable.

    • Naja Kaouthia@lemmy.world
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      11 months ago

      That’s awesome. My niece passed away several years ago waiting on lungs to become available (CF). Everyone in the family is an organ donor now. If we’re not using them might as well give someone else a shot.

      • cdf12345@lemm.ee
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        10 months ago

        I was diagnosed CF at three months old. I made it into my 20’s before I was on oxygen full time and was listed for a transplant. I got my transplant over 15 years ago and I’m still doing awesome now.

        So I try to thank donors in advance on behalf of the potential recipients of those life saving gifts.

        • Naja Kaouthia@lemmy.world
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          10 months ago

          I don’t know you but hearing this makes me incredibly happy and I wish you a long life and all the joy it brings!

      • cdf12345@lemm.ee
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        10 months ago

        Cystic fibrosis, it’s a genetic thing. The lungs have a harder time clearing mucus out and that eventually scars the lungs and reduces lung function.

        When I was born they didn’t even know what caused it (DNA defect that has a 25% chance of being passed to a child when both parents are CF carriers) .

        Now they have target medications to fix the genes that were damaged. It’s pretty amazing.

        I’m over 15 years post transplant and am doing great.

        • GentlemanLoser@ttrpg.network
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          10 months ago

          I’m really glad to hear it. Modern medicine is pretty wild when you think about it. Here’s to your continued health! 🥂